I kind of live by the theory that existing unapologetically is kind of like an extremely revolutionary [Music] act I was born with a heart defect that led me to develop pulmonary hypertension so before I had open heart surgery to repair it my parents took me to Disneyland for the very first time I get asked a lot like why do I love Disney and I always tell people like I was raised this way like I think my mom is actually the true Super Fan and she just spawned little fans I grew up going to the park as I got older I myself loved going to the parks life of corn hypertension is very much so dayto day some days are a lot better than others some days are rougher than other days I have like a medication regimen it’s like a combination of therapies to treat my pulmonary hypertension CU there is not a cure for it right now I use my oxygen concentrator and that’s kind of like my little jetpack that helps me to get the things done that I want to get done I also have a name for her her name is Stella the tank like like Megan the stallion I took time in doing the work with you know a therapist and having a really good core of support with my family and friends that helped me to feel more comfortable and accept my oxygen tank that’s kind of where the idea of getting like a social media presence was just so when the next person got put on oxygen full time they could at least see me and know that they’re not by themselves [Music] I’d like to think that I’m not just solely defined as somebody who has pulmonary hypertension which is why I like showcase like all facets of my life and I show my existence I show my joy I show all of that so you get like a full picture and a full reality of like somebody who lives with pulmonary hypertensions this is what like a real person looks like